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Horseshoe Crab's avatar

I'm also ASD and have a lot of the same problems Marianne Eloise has, and my current role is working with ASD adults. I'm not a therapist or psychiatrist, so don't assume I am one. I've written and published three novels, too. You probably haven't read them.

FDB is paying the author a compliment here by taking her work as seriously as he takes everything else. If she's overcoming adversity to be taken seriously, she succeeded. My books don't get reviews out of the blue, so good for her. The bad reviews I have gotten haven't been this well-written or comprehensive. They are one-line one-star reviews on Amazon.

I'm completely in agreement with FDB that a disability is only a disability if it negatively impacts the person afflicted by it. Otherwise, it's not a problem. Additionally, there are much, much worse disabilities to have than high-functioning ASD. Try low-functioning ASD, or any number of other problems whose sufferers can't write about, because they can't write at all! Or being ASD and low status.

A big problem in publishing, and this is going to sound like I'm bitching (because I am), is that the author's identity is far more important than their work. Marianne Eloise was published because she's a young, elite, educated woman. I could write a memoir about my life dealing with the same problems (even down to the EDS) and no one, no one at all, would care. I'm too old, too male, and too low status. I'm not unhappy about any of that, because I've long since given up on a literary career (lol), nor do I consider my particular struggles of any interest to people I don't know, but it's true and FDB doesn't quite say it. Status matters in memoirs.

It's especially matters if you don't accomplish anything on your own! Even low status people get interest if they do something extraordinary. I'm not sure what Eloise has done other than write about having a disability while being young and high status.

Temple Grandin, for instance, has written a lot of memoirs, but she's only interesting because she's accomplished a lot, too. She takes a dim view of autistic people obsessing about how disabled they are. The goal is how to be a useful person, overcome challenges, and use your gifts. In other words, the same as everyone else.

Everyone has problems. Everyone. Some are much worse than others, and it's all unfair. Treating a relatively mild problem like high-functioning ASD (and I have it, and I know exactly what I mean) as an epic challenge to a high-status person who would otherwise end up much the same without it, is worth questioning. How, exactly, would her life be different without ASD?

I work with people at a community college who have ASD. Last week, the most challenging thing one student had to do was open a combination lock. The fine motor skills and the need for detail were overwhelming. They were so upset by it that they had to ask for help. Another student felt sorry for them and did it. How must that feel?

Doesn't sound very warm or fuzzy, does it? Something someone would brag about in a memoir?

I know FDB has worked with the most difficult students in the public school system, and I appreciate that he doesn't dance around someone who doesn't deserve special consideration for a very mild disability. It's an elite person exploiting her status to tell us about her problems, which no one would care about otherwise. If Eloise was doing something for the people who aren't being helped, that would be great. But it's all about her.

Literature is a way to meet people who are different than you. That's fine, but the writer needs to make it worth your time to meet them.

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Lirpa Strike's avatar

I see you are getting the Jesse Singal treatment: being accused of being obsessed with somebody simply because you did your job correctly.

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